You can help us shed light on Lewy Body Dementia and become an advocate for change. Remove the social stigma associated with dementia. Learn the symptoms that indicate a loved one may have LBD or another dementia disease, and what to say to encourage them to seek medical help. Find resources here.

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Come and see SUE’S STORY, an award-winning documentary.
Stay for a Q&A with experts.
Bring family and friends.
Attend or host a film screening event in your area.

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Every 4 seconds someone is diagnosed with dementia. The average life expectancy from diagnosis of Lewy Body Dementia (LBD) is 5-9 years.

Learn about LBD, how it fits into the spectrum of dementia diseases, and the challenges for researchers and physicians.

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SUE’S STORY connects with people and organizations across the country who want a better future in which dementia can be treated or cured.

Share your story. Let us know how dementia has affected your life, and what you’d like to do to make an impact in your community. Email to learn more.

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What you can do to shed light on Dementia and become an advocate for change.

Know the symptoms to look for, what to say when a loved one is struggling with mental and physical changes, and how to say NO to social stigma. Learn more.

The Sue’s Story Project is a project of the Susan and Charles Berghoff Foundation, a registered public charitable organization (EIN: 86-2416258). Our programs are 100% funded by grants and donations. Donate online or by mail. Make check payable and mail to: Susan and Charles Berghoff Foundation, PO Box 1669, Morgan Hill CA 95038.