Vision & Mission

We envision a world in which people with Lewy Body Dementia can live with purpose, dignity and hope until a cure is found. Our mission is to increase awareness, caregiver resources, and research funding to find a cure for this fatal neurodegenerative disease. Scientists are now stating publicly that LBD may be one of the most misdiagnosed and underdiagnosed forms of dementia in modern society.

Storytelling

We have captured Sue Berghoff’s journey with Lewy Body Dementia (LBD) in SUE’S STORY, a documentary film, because she wants others to benefit from her experience.

With each screening of SUE’S STORY we’ve witnessed its power to spark conversation and inspire social change in the form of:

  • Growing awareness and understanding of dementia in general and in LBD in particular
  • Removing the stigma wrongly associated with dementia
  • Attracting research funding focused on LBD, bringing it out of the shadows of Alzheimer’s and Parkinson’s disease
  • Advocating for community-based caregiver resource for families living with LBD

Impact & Engagement

The Sue’s Story Project is focused on social impact and engagement to bring about change. We work to build relationships and partner with individuals and organizations in order to screen the film to audiences looking for answers. Each screening is followed by a Q&A with guest speakers with expertise in research, healthcare, and caregiving services and resources. Our goal is to align with and support others focused on overcoming the growing challenge of dementia in our world.

Together, we can #DisruptDementia, one beautiful mind at a time.