Join us to defeat
Lewy Body Dementia
When Sue Berghoff was diagnosed with Lewy Body Dementia, her life was turned upside down. The disease invaded her brain, stealing her ability to make conversation, schedule appointments, shop for groceries, or drive a car. Rather than be defeated by LBD, Sue became a powerful advocate for change, and The Sue's Story Project was born.
“When I found out I had Lewy Body Dementia, I decided to make something positive from my diagnosis by sharing my story. We need to shed light on dementia and remove its stigma. We’re not doing enough. Research is desperately needed if we’re going to find a cure.”
– Sue Berghoff, Co-founder, The Sue's Story Project –
TOGETHER WE’RE MAKING AN IMPACT
ON LEWY BODY DEMENTIA
THE SUE BERGHOFF LBD RESEARCH FELLOWSHIP AT STANFORD
Research is underway at Stanford to identify novel markers of Lewy body dementia. This work is critical in the development and testing of therapies and a cure.
Stanford’s collaborative approach—integrating clinical, behavioral and translational research—is reason for hope for families living with LBD.
Current Initiatives
CME/CE training for doctors and nurses
Dementia education for college students
Funding for focused medical research
Learning tools for dementia caregivers
Request a Film Screening
SUE’S STORY examines one of the greatest challenges of our time: the rise of dementia in a world unprepared to deal with it. The film takes viewers on a journey with Sue Berghoff, whose own struggle with Lewy Body Dementia fuels her determination to bring about change so that people with dementia can live with purpose, dignity and hope. For patients and their caregivers as well as healthcare students and professionals, SUE’S STORY offers an honest, helpful perspective on a little-known yet prevalent and fatal form of dementia.
